I am a 40 years old man with Ménétrier disease. I would like to find other people worldwide with the same problem to share information and experiences. You can contact me here on the board or by email: felixauftour@gmail.com.
I was tested negative for helicobacter pylori and CM-Viruses. At the moment I get a therapy with Cetuximab. I look forward to hear from you, so we can share our knowledge.